Rare aUCTION FOR RARE DISEASE 2025!

Hello friends,

Thank you for all of your ongoing support for the Frances Changed My Life campaign.

Most of you already know this, but midway through tour in 2021, our daughter Frances was diagnosed with a one in a billion genetic disease called DHDDS.

70% of rare diseases are diagnosed in childhood and more than 90% of rare diseases — including Frances’ — are without an FDA approved treatment. Kids with DHDDS and other rare, neurodegenerative diseases experience the symptoms of mental and physical decline that are usually associated with diseases like Alzheimer’s, Parkinson’s and dementia. 

Through Frances Changed My Life, we have been working to raise awareness and crucial funds to help change the future for Frances, and for all other kids and families navigating the emotional toll and financial costs of rare diseases.

Today we are launching our inaugural RARE Auction which features RARITIES like tour hangs with the band backstage, a trip to The GRAMMYs, a private island getaway, and a buncha cool RARE experiences. 

Your contribution by way of this auction helps support critical translational research to find treatments and therapies. It also gives hope for other children and families facing DHDDS and similar neurodegenerative diseases.

Thank you for being part of the solution. Your support means a lot to everybody over here! 

AUCTION LINK: bit.ly/RAREauction